THE family of a young man who died two years ago this week are determined to raise awareness of the little-known condition they believe killed him.
An inquest into the death of 29-year-old Justin Strong from Melksham blamed Sudden Adult Death Syndrome (SADS) but his family are still searching for answers.
His sister, Julie Strong, said: "People just don't know Sudden Adult Death Syndrome exists but there are about 3,500 people dying in this country every year from heart problems they didn't know they had."
In most cases of SADS an explanation, usually a previously undetected heart condition, can be found during an autopsy but in about 150 instances, including that of Mr Strong, there seems to be no reason for the death.
Miss Strong and her sisters, Jayne Scot, Karen Stephens and Justin's twin, Kate, believe he was a victim of Long QT Syndrome, a little-known condition where the electrical impulses in the heart are faulty.
Mr Strong had a history of collapse and had to be resuscitated on several occasions, the first when he was just eight years old, but despite tests doctors could never find anything wrong with him.
His family have been researching Long QT Syndrome and are convinced it is behind his death.
They are now trying to raise awareness of the condition to try and stop other families going through what they have.
Miss Strong said: "In America where it is much more widely known I have read about people having pacemakers fitted which will jump start the heart if needed and people go on to lead perfectly normal lives."
Her brother, a former pupil at the George Ward School, worked for the MOD at the joint services unit at Corsham.
He had a passion for Minis and spent many weekends travelling to car shows.
His sisters have kept his own beloved Mini and take it to shows in his memory, last weekend going to Kemble Airshow in Gloucestershire.
Miss Strong said: "Going to the show was the last thing I did with him two years ago so it was quite poignant taking his car back there."
The family, including Mr Strong's parents, Norman and Wendy, are still trying to come to terms with the loss.
Miss Strong said: "In some ways it doesn't make a difference it is the anniversary because it is always an anniversary whether it is the time he was found or it's a day, a week or a year. It never goes away."
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